The need for worldwide palliative care coverage has never been greater. As the incidence of non-communicable diseases like cancer is rising in resource-limited settings, the need for palliative care alongside curative treatment is also growing.
Basic symptom control and holistic support are not expensive and do not require highly specialized personnel, but are often lacking even where health structures and home based care programs are in place.
Inadequate drug supplies are partly to blame, but equally important area lack of basic understanding of palliative care amongst healthcare workers at all levels, a lack of confidence in communication skills and a lack of knowledge of symptom control techniques. All of these may compound the inadequate procurement of the needed palliative care drugs.
For these reasons communities and health workers can be overwhelmed by palliative care needs that they do not feel equipped to meet. Despite these challenges, it is not acceptable that we have to suffer and die without dignity solely because of the place we are born and live.
In Rwanda, we consider comprehensive health care as basic human right, and thus have decided to address these challenges by implementing a coordinated Palliative Care program.
While this will certainly be a great undertaking, we will take it step by step. As a well-known Indian Proverb says “When you want to eat an elephant you need to decide where to start and then just eat a little bit at a time”.
Since the National Policy of Palliative Care was adopted by Rwanda Ministry of Health in March 2011, Rwanda has devoted a great deal of time and energy toward improving the quality of life ofpatients with life-threatening illnesses.
A center of excellence for Palliative Care (PC) has been set up at Kibagabaga Hospital with a success stories of task shifting in the community, all working hand in hand with Palliative care Association of Rwanda which made that dream possible.
Two hospitals have already started to integrate PC as a routine activity using Kibagabaga hospital’s experience, Teaching Hospital (CHUK) and Rwamagana Hospital.
The national plan has several parts, including training health professional to be more comfortable to manage patients in the Palliative Care program. This is included both clinical teaching and supply chain management.
From 27th-28th June, 2013, the Ministry of Health in collaboration with the Rwanda Palliative care association organized a two day workshop to develop a national framework for the estimation, procurement and use of opioids in Rwanda.
A group of Experts from Rwanda led by Dr. Muhimpundu Marie-Aimee, head of NCD Division, MOH Rwanda with Rose Gahire (Executive Director of PCAR), Grace Mukankuranga (Executive Secretary of PCAR), Dr. Christian Ntizimira (Kibagabaga Hospital), Dr. Jean Luc Nkurikiyimfura (Head of HIV/AIDS Clinic, Teaching Hospital CHUK), PhmTayari (Director of marketing and sales/ MPPD/ RBC), Phn Theogene (Pharmacy Desk/MOH), Dr. EvaristeNtaganda (RBC/ NCD/ Director of CVD Unit), Dr. Kayonde Leonard (RBC/NCD/Director of Cancer Unit), Dr. Jean Baptiste Nkuranga (Director of Rwamagana Hospital) and Diane Mukasahaha Expert in Palliative care, participated in the workshop.
A team from Uganda Ministry of Health and palliative care association was invited to share the experiences, challenges and opportunities that would help the Rwanda team to develop their own plan.
The team was led by Dr. Mhoira Leng (Mulago Hospital), Dr. Henry Luzze (Division of NCDs MOH, Uganda), Rose Kiwanuka (Executive Director of Palliative Association of Uganda) and Dr. Dan Knights Medical Student fellow from UK.
Dr. Muhimpundu said that the aim of the workshop was to estimate the needs of the opioids and to define procurement, request, and monitoring channels and develop a national framework that will guide the MOH in the management of opioid use in Rwanda.
Kibagabaga Hospital has developed a specialized palliative care service and has become a Centre of excellence in the field. In a 12 month period, Kibagabaga hospital, which sees 55,000 patients per year (inpatients & outpatients), is using 0.12kg of oral morphine.
By using that experience we estimated the opioid needs for one year based in our administrative health sector and our decentralization, an approximate projection of realistic usage in the following eight facilities was made, taking in account expected numbers of patients per year.
The following are the main hospitals and their estimation: CHUK (0,3 KG), Rwanda Military Hospital (0,2KG), King Faysal (0,2 KG), Butaro ( 0,2KG), CHUB (0,12KG), Rwamagana (0,12 KG), Rwinkwavu(0,12 KG), Kibagabaga (0,12 KG) accounting for 1.38 KG.
In our decentralized health system, the level below referral hospitals is the District Hospitals. Rwanda has 42 District hospitals, all of which have a Multidisciplinary Team including physicians. At district level in its phase one of the Implementation plan, 10 hospitals and their catchment area will use the same amount of opioids as Kibagabaga Hospital and at the same time the 30 remains hospitals will use half of that amount: 0,6kg.This accounts to a morphine quantity estimated at 3.12 Kgs.
Finally, with a buffer stock that accounts to 10% (0, 5 KG), the total morphine that is required during the period 2013-2014 for our National PC program is estimated to 5 Kgs.
Dr. Agnes Binagwaho, Minister of Health of Rwanda, said that after having almost reached Millennium Development Goals 4&5 and doubling the life expectancy of our population, it is time to focus on improving the quality of life of Rwandans, and thus needing all health professionals to contribute to better management of chronic diseases and development of palliative care.
Author is a practicing doctor at Kibagabaga Hospital